So Many

spoonieofmayo: Raise your hand if you’re a really fucking tired spoonie rnLying still will also be...

Mon, 25 Jun 2018 03:53:57 -0400

Raise your hand if you’re a really fucking tired spoonie rn
Lying still will also be accepted

Everyone talks about “not being able to do things you did before” when you get diagnosed with a...

Mon, 25 Jun 2018 03:41:16 -0400

Everyone talks about “not being able to do things you did before” when you get diagnosed with a chronic illness… but I can’t relate to that

I’ve had AS since I was 13. Right when I started to really express myself and live my life, get hobbies, all that stuff. I can get bit doing something you weren’t able to a few years ago but not what most people mean when they say that.

I don’t mourn my life before my illness because I don’t know a life before my illness. Even morning my health is difficult.

chronically-overwhelmed: I made a few Spoonie versions of the...

Mon, 25 Jun 2018 03:30:33 -0400

chronically-overwhelmed:

I made a few Spoonie versions of the Same Hat!! meme.

aliewa:Doctor: How many days out of a month do you feel fatigued?Me: (stares into the camera like...

Mon, 25 Jun 2018 03:30:16 -0400

aliewa:

Doctor: How many days out of a month do you feel fatigued?
Me: (stares into the camera like I’m in The Office)

Things I've learned since becoming ill...

Mon, 25 Jun 2018 03:29:54 -0400

ciaocasper:

• It’s nobody’s fault. It is genetic. It just happened.

• Do not be too proud or stubborn to ask for help. You need it.

• Brush your teeth and wash your face (even just with a baby wipe) everyday if you’re able to do so. It makes you feel more human.

• Shower or bathe whenever you are able to. Good personal hygiene is good for your mental health.

• Some people will leave. You don’t need those people. Others will stay and they are wonderful human beings.

• You are not a burden. You are not useless. Do not be guilty. Please. Guilt will eat your insides.

• You have not lost who you are. You just now have to make adjustments to accommodate this new thing.

• Accept the fact that you have an illness. Being in denial will only make your mental and physical health worse.

• Clean pyjamas are a divine gift. As are clean bedding and blankets.

• Self care is entirely subjective. If you want to do yoga then do it, if you wanna sit and eat takeout in front of the TV in a squirtle onesie then that’s fine too. Whatever makes you feel good, or at least better.

• If you are tired then rest. Do not burn yourself out. It doesn’t matter what time of day it is, if you need a nap then you have one.

• Talk. Write. Sing. Paint. Draw. Dance. Do something to express your feelings. Don’t keep them inside. You’ll explode.

• Don’t worry if you can’t adjust right away. It takes time. A lot of time.

• Do not feel ashamed or embarrassed. Unfortunately illness often has embarrassing symptoms or such. It isn’t your fault. People who allow you to feel embarrassed about such things are terrible people.

• Keep your sense of humour. Some days it’s the only thing that gets you through.

• There will be good days. Grab them with both hands and enjoy them. Savour them. Spend them doing things you love, things that you can’t do on bad days.

• Prepare yourself to the best of your ability. Like…always have a hospital weekend bag packed for emergencies, keep a bed day drawer or bag near to where you sleep, have food or snacks close by, always have a water bottle…

• Take your meds. Please. If you have a serious illness for the love of god don’t listen to the “big pharma” conspiracy theorists. You need your meds. They keep you alive. They enable you to function.

• Research your illness. Keep yourself informed. But don’t dwell on what might happen. Please don’t scare yourself.
• It’s okay not to feel positive all the time. It’s okay to feel down. It’s perfectly natural. But try to be as positive as you can. For your own sake.
• Your own health comes first. It’s not selfishness it’s survival.

• Be kind to yourself.

• The bad days can be horrific but the good ones are beautiful, and so worth holding on for.

• Don’t give up on love. Just don’t.

• You are a badass warrior.

animatedtext: a few of you have asked where my avatar is from....

Sun, 24 Jun 2018 21:35:46 -0400

animatedtext:

a few of you have asked where my avatar is from. here is the original post i made a year ago <3

To People with Degenerative Illnesses

Sun, 24 Jun 2018 21:34:48 -0400

chronicillnessmemes:

I see you. You exist. You belong here. You deserve more positive and encouraging posts that don’t contain the message, “It will get better.”
I wish I had the energy to write them. But we do our best to make sure you don’t see any posts like that here. You still belong in our community.
Your existence is not anti-recovery. Your acknowledgement and acceptance of your life is brave and positive. It’s ok to get angry at anyone who would tell you otherwise.
You are doing the very best that you can. You exist so therefore you are enough. I love you all very much. You are doing the very best that you can. Please be kind to yourselves.
Admin J and Admin E

01101010-01100100: have empathy… we are all fucking stupid as dirt

Sun, 24 Jun 2018 21:34:37 -0400

01101010-01100100:

have empathy… we are all fucking stupid as dirt

uniej: ♡

Sat, 23 Jun 2018 13:53:28 -0400

uniej:

♡

trash-king-arrie: jupiter2: Snake Going To Bed follow me...

Sat, 23 Jun 2018 13:42:57 -0400

trash-king-arrie:

jupiter2:

Snake Going To Bed

follow me

Yes

anotherwellkeptsecret: pet owner: hears noise pet owner:

Sat, 23 Jun 2018 13:34:10 -0400

anotherwellkeptsecret:

pet owner: *hears noise*

pet owner:

Scuttles into a pet store with no money

Sat, 23 Jun 2018 13:31:53 -0400

rare-drop:

ryoubakvra:CHEEZBORGER CHEEZBORGER CHEEZBORGER NO PEPSI COKE

Sat, 23 Jun 2018 13:28:47 -0400

ryoubakvra:

CHEEZBORGER
CHEEZBORGER
CHEEZBORGER
NO PEPSI COKE

leonardodespacito:I SCREAMED THIS WAS SO FUNNY

Sat, 23 Jun 2018 13:23:48 -0400

leonardodespacito:

I SCREAMED THIS WAS SO FUNNY

whatifdestiel: hypohelmet: awlwwish: awlwwish: awlwwish: awlwwish: awlwwish: awlwwish: aw...

Sat, 23 Jun 2018 13:19:32 -0400

whatifdestiel:

hypohelmet:

awlwwish:

awlwwish:

awlwwish:

awlwwish:

awlwwish:

awlwwish:

awlwwish:

happy monday trans women are women and trans lesbian are lesbians

happy tuesday trans women are women and trans lesbians are lesbians

happy wednesday trans women are women and trans lesbians are lesbians

happy thursday trans women are women and trans lesbians are lesbians

happy friday trans women are women and trans lesbians are lesbians

happy saturday trans women are women and trans lesbians are lesbians

happy sunday trans women are women and trans lesbians are lesbians

you can only reblog this every time trans women are women and trans lesbians are lesbians

So you can reblog this everyday then.

masterpost of fish names i really like

Sat, 23 Jun 2018 13:11:12 -0400

reinhardt-ass:

iguanamouth:

hugh–jassmann:

elasticitymudflap:

Have you got any puppers with cute or strange markings?

Fri, 22 Jun 2018 22:55:06 -0400

sphallolaila: Listen I don’t give a shit what anyone says- you know your body better than anyone...

Fri, 22 Jun 2018 22:52:31 -0400

sphallolaila:

Listen I don’t give a shit what anyone says- you know your body better than anyone else. When you say you’ve hit your limit: stop. When you can’t keep your eyes open: sleep. When you’re hungry: eat. When you need to lay down and rest: fucking do that shit.
I’m tired of able bodied people trying to police our bodies and tell us to “push through” when that can seriously hurt or otherwise injure us.
Just because we can’t keep up with you doesn’t mean we’re not trying and just because you think we should be at a certain standard doesn’t mean we are OR EVEN HAVE THE SAME STANDARD.

Please just take care of yourselves y’all. Do what you can when you can and take a nap inbetween.

rangari: @samiesan

Fri, 22 Jun 2018 22:51:37 -0400

rangari:

@samiesan

Photo

Fri, 22 Jun 2018 22:50:21 -0400