spoonieofmayo:

Raise your hand if you’re a really fucking tired spoonie rn

Lying still will also be accepted

Everyone talks about “not being able to do things you did before” when you get diagnosed with a chronic illness… but I can’t relate to that

I’ve had AS since I was 13. Right when I started to really express myself and live my life, get hobbies, all that stuff. I can get bit doing something you weren’t able to a few years ago but not what most people mean when they say that.

I don’t mourn my life before my illness because I don’t know a life before my illness. Even morning my health is difficult.

aliewa:

Doctor: How many days out of a month do you feel fatigued?

Me: (stares into the camera like I’m in The Office)

ciaocasper:

• It’s nobody’s fault. It is genetic. It just happened.

• Do not be too proud or stubborn to ask for help. You need it.

• Brush your teeth and wash your face (even just with a baby wipe) everyday if you’re able to do so. It makes you feel more human.

• Shower or bathe whenever you are able to. Good personal hygiene is good for your mental health.

• Some people will leave. You don’t need those people. Others will stay and they are wonderful human beings.

• You are not a burden. You are not useless. Do not be guilty. Please. Guilt will eat your insides.

• You have not lost who you are. You just now have to make adjustments to accommodate this new thing.

• Accept the fact that you have an illness. Being in denial will only make your mental and physical health worse.

• Clean pyjamas are a divine gift. As are clean bedding and blankets.

• Self care is entirely subjective. If you want to do yoga then do it, if you wanna sit and eat takeout in front of the TV in a squirtle onesie then that’s fine too. Whatever makes you feel good, or at least better.

• If you are tired then rest. Do not burn yourself out. It doesn’t matter what time of day it is, if you need a nap then you have one.

• Talk. Write. Sing. Paint. Draw. Dance. Do something to express your feelings. Don’t keep them inside. You’ll explode.

• Don’t worry if you can’t adjust right away. It takes time. A lot of time.

• Do not feel ashamed or embarrassed. Unfortunately illness often has embarrassing symptoms or such. It isn’t your fault. People who allow you to feel embarrassed about such things are terrible people.

• Keep your sense of humour. Some days it’s the only thing that gets you through.

• There will be good days. Grab them with both hands and enjoy them. Savour them. Spend them doing things you love, things that you can’t do on bad days.

• Prepare yourself to the best of your ability. Like…always have a hospital weekend bag packed for emergencies, keep a bed day drawer or bag near to where you sleep, have food or snacks close by, always have a water bottle…

• Take your meds. Please. If you have a serious illness for the love of god don’t listen to the “big pharma” conspiracy theorists. You need your meds. They keep you alive. They enable you to function.

• Research your illness. Keep yourself informed. But don’t dwell on what might happen. Please don’t scare yourself.

• It’s okay not to feel positive all the time. It’s okay to feel down. It’s perfectly natural. But try to be as positive as you can. For your own sake.

• Your own health comes first. It’s not selfishness it’s survival.

• Be kind to yourself.

• The bad days can be horrific but the good ones are beautiful, and so worth holding on for.

• Don’t give up on love. Just don’t.

• You are a badass warrior.

chronicillnessmemes:

I see you.  You exist.  You belong here.  You deserve more positive and encouraging posts that don’t contain the message, “It will get better.”

I wish I had the energy to write them.  But we do our best to make sure you don’t see any posts like that here.  You still belong in our community.

Your existence is not anti-recovery.  Your acknowledgement and acceptance of your life is brave and positive.  It’s ok to get angry at anyone who would tell you otherwise.

You are doing the very best that you can.  You exist so therefore you are enough.  I love you all very much.  You are doing the very best that you can.  Please be kind to yourselves.

Admin J and Admin E

01101010-01100100:

have empathy… we are all fucking stupid as dirt

(via dearlesbian)